Jundishapur Journal of Chronic Disease Care

Published by: Kowsar

Investigating Challenges Facing Self-Management Empowerment Education in Adolescents and Youths with Major Thalassemia

Najmeh Razzazan 1 , Maryam Ravanipour 2 , * , Faezeh Jahanpour 3 , Ahmad Reza Zarei 1 , Niloofar Motamed 2 and Somayeh Hosseini 4
Authors Information
1 Department of Nursing, Student Research Committee, Bushehr University of Medical Sciences, Bushehr, IR Iran
2 Persian Gulf Tropical Medicine Research Center, Bushehr University of Medical Sciences, Bushehr, IR Iran
3 Department of Nursing, Bushehr University of Medical Sciences, Bushehr, IR Iran
4 Research Expert, Bushehr University of Medical Sciences Bushehr, IR Iran
Article information
  • Jundishapur Journal of Chronic Disease Care: October 01, 2014, 3 (4); e23366
  • Published Online: October 20, 2014
  • Article Type: Research Article
  • Received: April 11, 2014
  • Revised: May 7, 2014
  • Accepted: June 13, 2014
  • DOI: 10.17795/jjcdc-23366

To Cite: Razzazan N, Ravanipour M, Jahanpour F, Zarei A R, Motamed N, et al. Investigating Challenges Facing Self-Management Empowerment Education in Adolescents and Youths with Major Thalassemia, Jundishapur J Chronic Dis Care. 2014 ; 3(4):e23366. doi: 10.17795/jjcdc-23366.

Abstract
Copyright © 2014, Ahvaz Jundishapur University of Medical Sciences. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/) which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.
1. Background
2. Objectives
3. Materials and Methods
5. Discussion
Acknowledgements
Footnotes
References
  • 1. Rafii F, Fatemi NS, Danielson E, Johansson CM, Modanloo M. Compliance to treatment in patients with chronic illness: A concept exploration. Iran J Nurs Midwifery Res. 2014; 19(2): 159-67[PubMed]
  • 2. Tavasoli H, Alhani F. . Satisfaction Of Parent With Thalassemic Child From Nursing Cares. J Gilan Nurs & Midwifery Faculty. 2011; 9(1)
  • 3. Kiani J, Pakizeh A, Ostovar A, Namazi S. Effectiveness of Cognitive Behavioral Group Therapy (C.B.G.T) in Increasing the Self Esteem & Decreasing the Hopelessness of β-Thalassemic Adolescents. . Iranian South Medic J. 2010; 13(4): 241-52
  • 4. Ghazanfari Z, Arab M, Forouzi M. Knowledge level and education needs of thalassemic childern's parents of Kerman city. Iranian J Critical Care Nurs. 2010; 3(3): 99-103
  • 5. Arab M, Abaszadeh A, Ranjbar H, Pouraboli B, Rayani M. Survey of psychosocial problems in thalassemic children and their siblings. . j nurs res. 2012; 7(24): 51-63
  • 6. Yazdi K, Sanagu A, Jouybari L. Psychosocial, social and financial problems with coping strategies among families with thalassemic patients. J Gorgan U Medic Sc. 2007; 9(2): 71-5
  • 7. Zeighami MS,, Tajvidi M. Relationship between spiritual well-being with hopelessness and social skills in Beta-thalassemia major adolescents. J Birjand U Medic Sc. 2011; 8(3): 116-24
  • 8. Burns JJ, Sadof M, Kamat D. The adolescent with a chronic illness. Pediatr Ann. 2006; 35(3): 206-10[PubMed]
  • 9. Willison KD, Andrews GJ. The potential of public health to enhance chronic disease management. Public Health. 2005; 119(12): 1130-2[DOI][PubMed]
  • 10. Neishabori M,, Raeisdana N,, Ghorbani R,, Sadeghi T. Nurses' and patients' viewpoints regarding quality of nursing care in the teaching hospitals of Semnan university of medical sciences. . Koumesh Journal. 2011; 12(2): 134-43
  • 11. Hekmatpou D, Anoosheh M, Alhani F. . Pathology of Patient Education: A Qualitative Study. Iran J Nursi (IJN). 2007; 20(49): 51-60
  • 12. Aziznejad P,, Kashani nZ. Training in the use of coping self-care in adolescents with thalassemia Referred to thalassemia major children's hospital Amyrkla'. . Medic J Hormogzan. 2006; 1(3): 265-72
  • 13. Millard L, Hallett C, Luker K. Nurse-patient interaction and decision-making in care: patient involvement in community nursing. J Adv Nurs. 2006; 55(2): 142-50[DOI][PubMed]
  • 14. Lamiani G, Furey A. Teaching nurses how to teach: an evaluation of a workshop on patient education. Patient Educ Couns. 2009; 75(2): 270-3[DOI][PubMed]
  • 15. Virtanen H, Leino-Kilpi H, Salantera S. Empowering discourse in patient education. Patient Educ Couns. 2007; 66(2): 140-6[DOI][PubMed]
  • 16. Tol A, Alhani F, Shojaeazadeh D, Sharifirad G. Empowerment Approach to Promote Quality of Life and Self-Management among Type 2 Diabetic Patients. J Health Res. . 2011; 7(2): 157-68
  • 17. Topac V, Stoicu-Tivadar V. Patient empowerment by increasing information accessibility in a telecare system. Stud Health Technol Inform. 2011; 169: 681-5[PubMed]
  • 18. Salehi S, Javanbakhtian R, Hasheminia A, Habibzadeh H. The Effect of Family-centered Empowerment Model on Quality of life of Hemodialysis Patients. J Urmia Nurs Midwifery Faculty. 2012; 10(1): 61-7
  • 19. Tang TS, Funnell MM, Brown MB, Kurlander JE. Self-management support in "real-world" settings: an empowerment-based intervention. Patient Educ Couns. 2010; 79(2): 178-84[DOI][PubMed]
  • 20. Shearer NB, Cisar N, Greenberg EA. A telephone-delivered empowerment intervention with patients diagnosed with heart failure. Heart Lung. 2007; 36(3): 159-69[DOI][PubMed]
  • 21. Vahedian AA,, Alhani F,, Hedayat K. Barriers and Facilitators of Patient's Education: Nurses' Perspectives. . Iranian J Medic Educ. 2009; 11(6): 620-34
  • 22. Heidari M, Alhani F, Kazemnejad A, Moezi F. The effect of empowerment model on quality of life of Diabetic adolescents. Iranian J pediatr. . 2007; 17(1): 86-93
  • 23. Allahyari I, Alhani F, Kazemnejad A, Izadyar M. The effect of family-centered empowerment model on the Quality of Life of school-age B-thalassemic children. . Iranian J pediatr. 2007; 16(4): 455-61
  • 24. Ford S, Schofield T, Hope T. Barriers to the evidence-based patient choice (EBPC) consultation. Patient Educ Counsel. 2002; 47(2): 179-85[DOI]
  • 25. Taghdisi M, Borhani M, Solhi M, Afkari M, Hosseini M. Effect of educational program based on PRECED model on quality of life in patients with typeII diabetes. . J Gorgan U Medic Sc. 2011; 13(1): 29-36
  • 26. Zhao SH, Akkadechanunt T, Xue XL. Quality nursing care as perceived by nurses and patients in a Chinese hospital. J Clin Nurs. 2009; 18(12): 1722-8[DOI][PubMed]
  • 27. Najmabadi H, Ghamari A, Sahebjam F, Kariminejad R, Hadavi V, Khatibi T, et al. Fourteen-year experience of prenatal diagnosis of thalassemia in Iran. Community Genet. 2006; 9(2): 93-7[DOI][PubMed]
  • 28. Harteveld CL, Yavarian M, Zorai A, Quakkelaar ED, van Delft P, Giordano PC. Molecular spectrum of alpha-thalassemia in the Iranian population of Hormozgan: three novel point mutation defects. Am J Hematol. 2003; 74(2): 99-103[DOI][PubMed]
  • 29. Atapour M,, Zohoor A,, Zolala A,, Arjmand A. Evaluation of HbA2 in minor-Thalassemia carriers reffered to Kerman special disease center. J Kerman U Medicl Sc. . 2003; 10(2): 99-104
  • 30. Hadi N, Karami D, Montazeri A. Health Related Quality Of Life In Major Thalassemic Patients. . J Payesh. 2009; 1(4): 387-93
  • 31. Khani H, Majdi M, Azad M. E. , Montazeri A, Ghorbani A, Ramezani M. Quality of life in Iranian Beta-thalassemia major patients of southern coastwise of the Caspian Sea. J Behavioral Sc. 2009; 2(4): 325-32
  • 32. Hoseini H, Khani H, Khalilian A, Vahidshahi K. Psychological Aspects in Youths with Beta-Thalassemia Major, control group. . J Mazandaran U Medic Sc. 2007; : 51-60
  • 33. Cakaloz B, Cakaloz I, Polat A, Inan M, Oguzhanoglu NK. Psychopathology in thalassemia major. Pediatr Int. 2009; 51(6): 825-8[DOI][PubMed]
  • 34. Mockford . An Exploratory Descriptive Study Of The Needs Of Parents AfterTheir Young Child Is Discharged From Hospital Following An Admission With An Acute Illness [Master of Arts in Nursing thesis. 2008;
  • 35. Wood MJ,, Ross KJC. Basic Steps In Planning Nursing Research. 2006;
  • 36. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9): 1277-88[DOI][PubMed]
  • 37. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004; 24(2): 105-12[DOI][PubMed]
  • 38. Holloway I, Wheeler S. Qualitative research for nurses. 2002;
  • 39. Ravanipour M,, Salehi S, Taleghani F, Abedi HA, Schuurmans MJ, de Jong A. Sense of power amongolder people in iran. . J Educ Gerontology. 2008; 34(10): 923-38
  • 40. Ravanipour M,, Salehi S, Taleghani F, Abedi H. Power in Old Age: A Qualitative Study. . Psychiatry Clinic Psychology. 2009; 14(4): 447-53
  • 41. Sapountzi-Krepia D, Roupa Z, Gourni M, Mastorakou F, Vojiatzi E, Kouyioumtzi A, et al. A qualitative study on the experiences of mothers caring for their children with thalassemia in Athens, Greece. J Pediatr Nurs. 2006; 21(2): 142-52[DOI][PubMed]
  • 42. Malakouti SK, Noori R, Naghavi M., Ahmadi Abhari SA., Nasr E. M., Afghah S, et al. The burden of caregivers of chronic mental patients and their needs to care and therapeutic services. Hakim Res J. 2003; 6(10): 1-10
  • 43. Musallam K, Cappellini MD, Taher A. Challenges associated with prolonged survival of patients with thalassemia: transitioning from childhood to adulthood. Pediatrics. 2008; 121(5)-9[DOI][PubMed]
  • 44. Tahmasbi S, Ghofranipour F, Ravaghi K, Moghadassi J, Sadegh ML, Kazemnejad A. The effect of group discussion method on the self-image of teenaged thalassaemic patients. J Shahrekord U Medic Sc. 2006; 7(4): 50-7
  • 45. Saini A, Chandra J, Goswami U, Singh V, Dutta AK. Case control study of psychosocial morbidity in beta thalassemia major. J Pediatr. 2007; 150(5): 516-20[DOI][PubMed]
  • 46. Minet L, Moller S, Vach W, Wagner L, Henriksen JE. Mediating the effect of self-care management intervention in type 2 diabetes: a meta-analysis of 47 randomised controlled trials. Patient Educ Couns. 2010; 80(1): 29-41[DOI][PubMed]
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