Quality of Life in Children With Thalassemia who Referred to Thalassemia Center of Shafa Hospital

AUTHORS

K. Zarea ORCID 1 , * , Sh. Baraz Pordanjani 1 , M. Pedram 2 , Z. Pakbaz 3

1 Department of Nursing, Ahvaz Jundishapour University of Medical Sciences, Ahvaz, IR Iran

2 Department of Pediatric, Ahvaz Jundishapour University of Medical Sciences, Ahvaz, IR Iran

3 Childrens Hospital and Research Center at Oakland, Oakland, USA

How to Cite: Zarea K, Baraz Pordanjani S, Pedram M, Pakbaz Z. Quality of Life in Children With Thalassemia who Referred to Thalassemia Center of Shafa Hospital, Jundishapur J Chronic Dis Care. Online ahead of Print ; 1(1):32245.

ARTICLE INFORMATION

Jundishapur Journal of Chronic Disease Care: 1 (1); 32245
Published Online: May 19, 2012
Article Type: Research Article
Received: September 30, 2012
Accepted: February 24, 2012

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Abstract

Introduction and Objective: In addition to control of the disease, improvement of quality of life is important for treatment of the patients suffering from chronic diseases such as thalassemia. The aim of this study was to compare the children with thalassemia and their parents' point of view about the quality of life (QOL).

Materials and Methods: In this descriptive study, A 90 thalassemia patients with mean age of 17.29 years (SD = 6.28) were selected. During the comprehensive visits the SF36 questionnaire were completed. Patients rated SF36 from excellent (100) to poor (0) on nine and eight dimensions of health status. These results were accomplished by a brief medical history and chart review. Data were analyzed using paired t-test, independent t-test and descriptive tests.

Results: The mean quality rated by patients and their parents were 70.25 17.17 and 67.44 16.59 respectively. Only in social activity (P = 0.012) aspect there was significant difference between the two points of view.

Conclusions: This study suggests that all patients with thalassemia should undergo QOL assessment so that interventions focused on affected domains can be implemented to improved QOL.

Keywords

Thalassemia Parents Quality of Life

© 2012, Jundishapur Journal of Chronic Disease Care. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/) which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.

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